Friday, November 7, 2014

Life after surgery

Sorry for the delay in an update it has been a little crazy around here since Joseph's surgery on Wednesday morning.

Surgery went well despite a few hiccups with Nightscout and Dexcom not cooperating during the surgery and leaving us completely in the dark. Joseph did drop a little low during his surgery and they had to give him a bag of Dextrose to raise his blood sugar. The waking from anesthesia was pretty typical for a young child, he was pretty hysterical and out of it but once it wore off he was fine, no nausea and no vomiting YAY!

Joseph shocked us all when he started requesting to eat right away! This was the main reason that we decided to have him admitted for a night of observation. This boy is beyond tough and truly inspires us with his continued strength and resilience despite what life is throwing at him.

Joseph's recovery is going well and pretty smoothly, with the exception of his blood sugar. His pain medication with both a sugar and alcohol content, plus a healing distressed body are causing some seriously stubborn blood sugars!! Joseph's normal daily insulin intake ranges from 15-20 units and yesterday we gave him 33 units and still couldn't keep him below 200! We have increased basal, changed his correction factor and are giving bolus after bolus and we are still struggling. Diabetes has a mind of it's own and no matter how hard we work, we are never in control of the outcome. We are continuing to fight to bring him back into a more consistent range, but right now it just feels like a losing battle. You feel terrible as a parent that in addition to not feeling well because of surgery that now you are causing him to not feel well because you can't manage to bring down high blood sugars!

This disease is ruthless and frustrating, you can do everything you are supposed to do and it still isn't enough! You have no choice but to keep pushing through and fighting. We won't give up and we will get those numbers back where they belong, no matter what it takes.

Keep saying your prayers and keeping Joseph in your thoughts for a speedy and healthy recovery!

-until next time

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